International Trisomy 13/18 Alliance
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Founder Publications and Books

Publications

Janvier A and Farlow B et al, Paediatr Child Health. 2014 Jan;19(1):22-4 CPS position statement for prenatal counseling before a premature birth: Simple rules for complicated decisions

Janvier A and Farlow B. Am J Bioeth. 2014 Mar;14(3):15-6. doi: 10.1080/15265161.2013.879951 Arrogance-based medicine: guidelines regarding genetic testing in children

Janvier A and Farlow B et al, Semin Perinatol. 2014 Feb;38(1):38-46. doi:10.1053/j.semperi.2013.07.007 Communication with parents concerning withholding or withdrawing of life saving interventions in neonatology
 
Siri Fuglem Berg collaborated: 2014 September, Ethics and etiquette in neonatal intensive care
Health care professionals with experience from being a parent in the NICU present a systematic approach to etiquette-based communication with families in the NICU. The goal is to help parents feel well treated and respected through their child´s NICU stay.
Earlier publications in this field:
http://www.ncbi.nlm.nih.gov/pubmed/23734063
http://www.ncbi.nlm.nih.gov/pubmed/?term=berg+sf+thiele+p+farlow

Books

Berg S.F. & Robbins J, ITA, Trisomy 13 and 18 for younger children
Berg S.F. & Robbins J, ITA, Trisomy 13 and 18 for older children
Berg S.F. & Robbins J, ITA, A cherished pregnancy
Berg S.F. & Robbins J, ITA, A family dictionary
Berg S.F. Farlow B, Robbins J, Bruns D.A. ITA Preparing for your baby’s arrival

Siri Fuglem Berg author Evy Kristine, A Beautiful Journey Amazon USA/ UK

ITA Founders
Founders Presenttions and Seminars
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