International Trisomy Alliance Advisors
International Trisomy Alliance is in the process of inviting professionals who are involved in research and the care and support of those affected by trisomy 13 and 18 to join our Professional Advisors, and parents involved in groups or organizations providing support to families to join our Parent Advisors.
Professional Advisors
John C. Carey M.D., M.P.H.
Salt Lake City, Utah, USA. Medical Advisor SOFT USA Co Founder SOFT USA 1980
Siri Fuglem Berg M.D., Ph.D. Anesthesiologist, Co founder International Trisomy Alliance
Oslo, Norway, Mother of Evy Kristine full trisomy 18, 04.15.10 - 04.18.10
Deborah A. Bruns Ph.D. Associate Professor, Principal Investigator of the TRIS project, Co founder I.T.A.
USA, Dept of Educational Psychology and Special Education, Special Education Program
Martin J McCaffrey MD, CAPT USN (Ret), Professor of Pediatrics
Division of Neonatal Perinatal Medicine, UNC School of Medicine, Chapel Hill, NC
Annette Hollingsworth - Moore M.D., Obstetrician
San Bernardino, California USA. Mother of Anaya, full trisomy 18, born 2006
Daniela Robbins MBChB DRCOG Medical Practitioner
Bristol, UK, Trustee SOFT UK, Sister of Beth, full trisomy 13, 06.23.88 - 09.24.88
Parent Advisors
Ann M. Barnes RN, Co-author Care of the Infant and Child with Trisomy 18 or Trisomy 13, often referred to as 'the Care book', SOFT USA Mother of Megan Elizabeth full trisomy 18, 07.08.85 – 12.29.04
Daniela Fitzgibbon Italian translator for ITA. Mother of Annalucia Elizabeth, full trisomy 18, 05.27.09
Heidi Herdman Co founder Trisomy 18-13 Support UK, Mother of Saskia Elizabeth aged 21 years, full trisomy 18. Saskia is the oldest femaie with trisomy 18 in the United Kingdom.
Raluca Laura Manea România, English Teacher, Mother of Cati aged 2½ years, full trisomy 13.
Gilianny C. Nickerson Brazil (now lives in Florida) Mother of Noah aged 4½ years, full trisomy 13
Tracey and David Pass Co founders SOFT Australia and nurse/ midwife, Mother of Louise Ruth Pass, full trisomy 18, 23.01.90 - 07.02.90.
Kristen C. Cook Mother of Hannah Faith full trisomy 18, 03.19.14 - 01.01.15
Professional Advisors
John C. Carey M.D., M.P.H.
Salt Lake City, Utah, USA. Medical Advisor SOFT USA Co Founder SOFT USA 1980
Siri Fuglem Berg M.D., Ph.D. Anesthesiologist, Co founder International Trisomy Alliance
Oslo, Norway, Mother of Evy Kristine full trisomy 18, 04.15.10 - 04.18.10
Deborah A. Bruns Ph.D. Associate Professor, Principal Investigator of the TRIS project, Co founder I.T.A.
USA, Dept of Educational Psychology and Special Education, Special Education Program
Martin J McCaffrey MD, CAPT USN (Ret), Professor of Pediatrics
Division of Neonatal Perinatal Medicine, UNC School of Medicine, Chapel Hill, NC
Annette Hollingsworth - Moore M.D., Obstetrician
San Bernardino, California USA. Mother of Anaya, full trisomy 18, born 2006
Daniela Robbins MBChB DRCOG Medical Practitioner
Bristol, UK, Trustee SOFT UK, Sister of Beth, full trisomy 13, 06.23.88 - 09.24.88
Parent Advisors
Ann M. Barnes RN, Co-author Care of the Infant and Child with Trisomy 18 or Trisomy 13, often referred to as 'the Care book', SOFT USA Mother of Megan Elizabeth full trisomy 18, 07.08.85 – 12.29.04
Daniela Fitzgibbon Italian translator for ITA. Mother of Annalucia Elizabeth, full trisomy 18, 05.27.09
Heidi Herdman Co founder Trisomy 18-13 Support UK, Mother of Saskia Elizabeth aged 21 years, full trisomy 18. Saskia is the oldest femaie with trisomy 18 in the United Kingdom.
Raluca Laura Manea România, English Teacher, Mother of Cati aged 2½ years, full trisomy 13.
Gilianny C. Nickerson Brazil (now lives in Florida) Mother of Noah aged 4½ years, full trisomy 13
Tracey and David Pass Co founders SOFT Australia and nurse/ midwife, Mother of Louise Ruth Pass, full trisomy 18, 23.01.90 - 07.02.90.
Kristen C. Cook Mother of Hannah Faith full trisomy 18, 03.19.14 - 01.01.15
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