International Trisomy 13/18 Alliance
  • About ITA
  • Research Publications
  • TRIS Project: Ongoing research
  • Free Booklets
  • Trisomy 13/18 News
  • Trisomy Support Groups
  • Memorials
  • Contact Us

Trisomy 13/18 e Newsletters and News

Picture
Newsletter Archive
Annual Newsletter
Click the e newsletter to download the 2016 newsletter, or the Archive for previous issues. Please send us your trisomy 13/18 news, and your email details via the contact box if you would like newsletters emailed to you.
Professor John Carey, Dr Siri Fuglem-Berg and Jenny Robbins attend the SOFT UK Family Weekend
Picture
Jenny Robbins Dr Siri Fuglem Berg
Picture
Dr Nora Shannon Professor Joan Morris Professor John Carey Jenny Robbins
Picture
Professor John Carey with some of the families at the SOFT UK Weekend May 14/15th Hilton Northampton UK
A MUST watch! Neonatologist Dr. Martin McCaffrey, Medical Adviser to the International Trisomy 13/18 Alliance, speaks about his personal journey caring for newborns with T13/18 and how the evidence supports that doctors MUST change the way they care for these children. https://www.youtube.com/watch?v=UcLqb4VSkHc

Media: Specialist says proper medical care leads to longer lives
Dr Glen Green said,
"Children with trisomy 18 who get proper medical care can live longer lives. Giving these kids medical care makes it possible for them to live past a year. We  know that there are things that can be done"....... more

Press Release Women not given accurate information about pregnancy blood tests Aug 2015

Women seeking to make informed decisions regarding non-invasive prenatal tests (NIPT) are not receiving accurate information.....more   

Parents’ Submission to London Hospital Clinical Ethics Committee  July 2015 
Our unborn daughter was diagnosed with Trisomy 18 at 23 weeks’ gestation.  When we considered the care we wanted for our daughter.....more  

​
ITA cited as Resources for Patients
Never say never about our child   Published on  06 May 2015 Cite this as: BMJ 2015;350:h1246
http://www.bmj.com/content/350/bmj.h1246/rr-15 
​​

​Trisomy 18 and trisomy 13 - incompatible with life - RUBBISH
 
           Leila aged 3 trisomy 18                   Maristella aged 3 trisomy 18            Adalee age 3 trisomy 13
Photos courtesy of Tracking Rare Incidence Syndromes (TRIS) project, Southern Illinois University Carbondale



PLEASE NOTE: The text and photographs on this website must not be reproduced or transmitted in any form without  written the permission of the copyright holder International Trisomy Alliance. The information provided on this website by International Trisomy Alliance is for general information purposes only, and whilst every attempt has been made to ensure the completeness, accuracy, reliability, and suitability of this  information, neither International Trisomy Alliance nor the website hosts can accept liability for errors or any misinterpretation resulting from its use, and  any reliance you place on such information is therefore strictly at your own risk. In no event International Trisomy Alliance we be liable for any loss or damage whatsoever, including without limitation and indirect or consequential loss or damage, arising from the use of this website. June 2013 ©
Powered by Create your own unique website with customizable templates.
✕